منابع مشابه
When Children Become Adults: Should Biobanks Re-Contact?
• Children’s samples are usually included with parental permission, and there is no clear guidance on whether participants should be re-contacted at maturity to obtain their permission for the continued use of their samples. • Respect for autonomy and protection of privacy are important arguments in favor of recontacting participants at maturity. • There are four re-contact policy designs that ...
متن کاملPersonalized assent for pediatric biobanks
Pediatric biobanking is considered important for generating biomedical knowledge and improving (pediatric) health care. However, the inclusion of children's samples in biobanks involves specific ethical issues. One of the main concerns is how to appropriately engage children in the consent procedure. We suggest that children should be involved through a personalized assent procedure, which mean...
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—Much confusion exists over the proper way to handle nest-fate data collected after the fledge date when using the Mayfield method. I provide a simple numerical example showing how use of these data can bias estimates of daily survival probability, and present a likelihood function demonstrating that nest-fate data collected after the fledge date do not contribute any information for parameter ...
متن کاملForensic uses of research biobanks: should donors be informed?
Occasional reports in the literature suggest that biological samples collected and stored for scientific research are sometimes accessed and used for a variety of forensic purposes. However, donors are almost never informed about this possibility. In this paper we argue that the possibility of forensic access may constitute a relevant consideration at least to some potential research subjects i...
متن کاملWhen and How Should Clinicians Share Details from a Health Record with Patients with Mental Illness?
Stigma associated with mental illness-a public health crisis-is perpetuated by the language used to describe and document it. Psychiatric pathology and how it can be perceived among clinicians contribute to the marginalization of patients, which exacerbates their vulnerability. Clinical documentation of mental illness has long been mired in pejorative language that perpetuates negative assumpti...
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ژورنال
عنوان ژورنال: American Journal of Medical Genetics Part A
سال: 2010
ISSN: 1552-4825,1552-4833
DOI: 10.1002/ajmg.a.33287